Wedding!
Sunday, September 30, 2012
Saturday, September 29, 2012
Friday, September 28, 2012
Thursday, September 27, 2012
CF
Wednesday, September 26, 2012
8 months and 23 days
Thats how long it has been since I last started IVs!! Or will be based on when I next start them, which will be next tuesday.
After spending the last couple of months gradually and almost unnoticably getting worse. Day to day tasks getting that little bit harder to complete, things like that.
Also despite my best efforts the weight is dropping off. I have now lost a kilo in weight since being at clinic two weeks ago-thats not great news.
So on Tuesday I will be starting 2 weeks of IVs and will be doing them at my parents house so my mum can help do some of the doses and things like cook for me so I dont have to, so hopefully can get the best benefit from them.
I am getting my 'wonder' drug and 1 other, so although the side effects from the tazocin are not great the good stuff it does is worth it. I will be on anti-sickness tablets from the start this time so hopefully the tazocin side effects wont be so bad.
After spending the last couple of months gradually and almost unnoticably getting worse. Day to day tasks getting that little bit harder to complete, things like that.
Also despite my best efforts the weight is dropping off. I have now lost a kilo in weight since being at clinic two weeks ago-thats not great news.
So on Tuesday I will be starting 2 weeks of IVs and will be doing them at my parents house so my mum can help do some of the doses and things like cook for me so I dont have to, so hopefully can get the best benefit from them.
I am getting my 'wonder' drug and 1 other, so although the side effects from the tazocin are not great the good stuff it does is worth it. I will be on anti-sickness tablets from the start this time so hopefully the tazocin side effects wont be so bad.
Sunday, September 23, 2012
Gangshow
A Gang Show is a theatrical performance with a cast of members from Scouts and Guides. This includes adult leaders! There is a senior gang made up of anyone aged over 12 usually and a junior gang of anyone aged 8-12yrs.
The format of a Gang Show is essentially a revue or variety show; song, dance and short comedy sketches are the most common items. The number of items varies (commonly ranging between 12 and 25): some are stand-alone, others are a series of songs conforming to a chosen theme, or a running gag.
A typical show will include a big opening number, some comedy sketches, several musical items with a mix of group and solo work, dance numbers and of course a grand finale. Some of the material is well-known, other material is original to Gang Shows, sometimes even penned by the young people themselves.
The show's format was created by the late Ralph Reader CBE, the original Gang Show producer, who went on to write much material for Gang Shows, sketches musical numbers and Pageants including the signature tune On the Crest of a Wave.
So now you all know what a gangshow is- you are probably still wondering why I am blogging about it. Well the district that I belong to as a beaver scout leader has just started their rehearsals for gangshow. We hold one every 2years. This will be the second gangshow I will be a part of.
The last show my lung function was at 68% during rehearsals and I was ready to go on IVs at the end of the week with a lung function of about 62%. At the start of the rehearsals my lung function is sitting at 56% which is my apparent new norm. I thought I would be ok and that although I found some of the rehearsals tough last time I would still be ok. I am currently being proven wrong. So far we have only sung through the finale songs and that is enough to make my chest sore and achy because its getting tight and wheezy and generally making me cough my guts up. Things could get interesting but I still plan on perservering. I refuse to let this disease stop me from doing something else I enjoy doing.
So singing songs such as 'Religion of life' and 'crest of the wave' is most definitely interesting with a 56% lung function but I will not be deterred.............
The format of a Gang Show is essentially a revue or variety show; song, dance and short comedy sketches are the most common items. The number of items varies (commonly ranging between 12 and 25): some are stand-alone, others are a series of songs conforming to a chosen theme, or a running gag.
A typical show will include a big opening number, some comedy sketches, several musical items with a mix of group and solo work, dance numbers and of course a grand finale. Some of the material is well-known, other material is original to Gang Shows, sometimes even penned by the young people themselves.
The show's format was created by the late Ralph Reader CBE, the original Gang Show producer, who went on to write much material for Gang Shows, sketches musical numbers and Pageants including the signature tune On the Crest of a Wave.
So now you all know what a gangshow is- you are probably still wondering why I am blogging about it. Well the district that I belong to as a beaver scout leader has just started their rehearsals for gangshow. We hold one every 2years. This will be the second gangshow I will be a part of.
The last show my lung function was at 68% during rehearsals and I was ready to go on IVs at the end of the week with a lung function of about 62%. At the start of the rehearsals my lung function is sitting at 56% which is my apparent new norm. I thought I would be ok and that although I found some of the rehearsals tough last time I would still be ok. I am currently being proven wrong. So far we have only sung through the finale songs and that is enough to make my chest sore and achy because its getting tight and wheezy and generally making me cough my guts up. Things could get interesting but I still plan on perservering. I refuse to let this disease stop me from doing something else I enjoy doing.
So singing songs such as 'Religion of life' and 'crest of the wave' is most definitely interesting with a 56% lung function but I will not be deterred.............
Wednesday, September 19, 2012
Friendship musings...
So I've been doing some thinking, mainly about how so much has changed in the space of 9 months. Someone who I considered to be one of my best friends stopped talking to me, mainly from what I can understand was a difference in an opinion and she didn't like it. I've been luckily enough to meet the man I plan on spending the rest of my life with and he has never met her and she has never met him. I never dreamt she would be out of my life, but so it seems is the case. Every day I see things around me that remind me of her, I still have photos and presents that she gave me all around my house and I dont think I will ever be able to get rid of them either. Just tonight I used the 1 person teapot and cup set she gave me, realised Freddy is still sat in my living room (hes a me to you bear she gave me in my 2nd yr of uni) watching over me and in the kitchen above my sink is a plaque about friendship, also from this person. Then on facebook I saw these 2 photos which resonated with me quite alot over this situation:
The first one especially as I have tried 2 or 3 times in the last 9months and there has just been no response or interest. I don't even know if she still has the same number or email address. The second one is true also because all I did was speak honestly about my feelings and thoughts and offered an opinion and its been blown so out of proportion that it seems she was angry about honesty.
I need to look to the future and stop thinking about what could have been and why some friendships survive and why some die. I think about this alot and there will be many a musing on this topic.
I need to look to the future and stop thinking about what could have been and why some friendships survive and why some die. I think about this alot and there will be many a musing on this topic.
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