IVs and some thoughts

Ok, so I am now a week into my IVs. I feel better in myself, my cough is reduced generally and its becoming more of a dry cough than a productive one. Yet if you look at the clinical numbers I am actually slightly worse off than when I started last week. I will be going with how I actually feel rather than the numbers though.

Last wednesday was a very long and emotional day. I still didn't get all the answers I need and still face more tests before anything can be truly determined. My x-ray showed radiological changes in comparison to my previous years on the left hand side. This by itsself isnt necessarily anything to worry about as it could just be a patch of infection. However when placed with somethings it could also be a sign of Aspergillus becoming a problem and having to treat. One of the blood tests that would also confirm Aspergillus hadn't come back. So depending on that result and another x-ray in September could be a start of some new treatment. However this treatment can only take place if they are 100% confident it will help as the side effects can be potentially quite damaging due to my diabetes. It's a tough balance to strike, but ultimately may improve my lung function.

My vitamin levels were low. They are always low when they are tested so I wasn't surprised to hear that. However to hear that my dietician possibly wanted to come in and talk to me about it after the doctor left I was not so impressed with. I had been sat in clinic for an hour with noone coming into see me and I had heard the dietician say she had seen everyone she needed to. So she had another thing coming if she thought I was going to stick around for her to talk me after the doctor left me!! As it was I got to the hospital at 10am wednesday morning and did not leave until 4.30pm. This meant I did not get home until gone 5.30pm!!

I also expressed what I thought is pure stupidity on the Ultrasound department for allowing diabetics to have scans in the afternoon. I had not been able to eat since 8am and then they were slightly delayed in doing my scan. I was starting to feel hypo and had a bad headache for the rest of the day. I feel there should be a question on their forms when the scans are booked asking if the patient is diabetic and therefore giving them an appointment as early as possible in the day.

Annual assessments are just stressful days and its possibly more irritating that it was a month after the tests were done supposedly so all the results will be in and then they arent so you still cant discuss everything you want or need to.