Catch up time

So the IVs have finished. At the start of them my lung function had dropped to a new all time low of 52%, by midway they had come up to a fairly respectable 62% and a week after they finished when it was retested it was back to 58%. 58% seems to be my new norm. I dont really like it to be honest but its something to deal with and live with. This time last year my norm was about 65%. It doesnt sound like a big difference but if it drops the same amount every year, it will be just 3-4years before it is in the 30s and words like 'you should consider lung transplant' are bandied around. I would rather those words werent heard until like another 10years or so, so now it becomes a battle to get my CF team to support me and work out a way to keep them stable at where they are now for a few more years.

Wedding plans are going fairly well. I now have the church booked, a reception venue booked, the mens suits booked, bridesmaids have been asked and accepted their roles, the ushers have been asked and accepted their roles, D has a best man, I have a colour theme. The cake design is sorted, save the date cards have been ordered and sent out, lots of ideas for the little extra bits have been thought of and are being worked on.

I am finding wedding planning and it all involves quite stressful, but not the parts you would think. Things people say should be extremely stressful, I have completed with relative ease, the bits that should be fun and joyful I am finding the most stressful. I am already sick to the back teeth of the phrase 'its your day, you should have what you want BUT' as this is then usually followed with something I don't really want or like but will end up having no choice of having or doing to please other people.

a beaver sleepover is planned and organised and being run at the weekend. Hopefully the kids will enjoy it, about half the colony are going which is a good number. Got some parent helpers as well which is even better.