Clinic update

Well that was an interesting clinic appointment and not really in a good way.

Since my last clinic appointment 2months ago I have lost 3kg in weight (I thought it was only 1), this is not good. My lung function has remained the same at 55% (lung function is worked out on your gender, height and weight of an average person. So it is possible to get more than 100% as you have better scores than expected of an average person of your gender, height and weight).

So yay lung function isn't worse but this is still not great. As when you look at it, it's only really 1 working lung out of the 2.

Then the dietician came in! She started looking back on my notes which show what my weight and lung function have been previously, in a nice handy sheet where they get written on. This time last year my lung function was 20% higher and my weight was 7kg heavier. To think that 55% has now become my accepted baseline is worrying.

Even at the start of this year I was about 65% so in 6months I've lost 10% and they aren't bothered and think its ok.

It's a little bit scary and depressing when you look at the numbers like that.

However as is the case in Cystic Fibrosis numbers aren't everything and you have to go on how you are feeling as well. Sometimes the numbers can be great but quality of life and how you feel can be rubbish and the other way round. My numbers aren't great but I feel ok. I am capable of doing pretty much everything that I want to do without too much trouble. Ok it takes me longer to recover than most people but that's life and I deal with it.

All I know is the dietician is going to bring these points up at the end of clinic in the team meeting that they have. So who knows what will happen next, if they will continue to just see how I do, or if they will want to make changes now.

After this clinic appointment all I know is- my annual assessment review (a yearly thing where there is a day of lots of different tests to assess overall health and then an afternoon where the results of said tests and review of the years events are relayed to you) is not going to be a particularly positive one!