Oh yeah! managed to just get my lung function back into the 60s (63%) and escaped ivs and also a stay in hospital!!
Here's hoping I can now keep this stable. My weight stayed exactly the same, luckily the dietician wasn't around in clinic so I didn't have to face her. I have a feeling I may get put on extra supplements next time I do see her if weight doesn't improve any time soon, which it won't because I'm not eating snacks as I dont want to do extra insulin injections- its abit of a vicious cycle really.
The diabetic side of the clinic also went well. my hBa1c had improved since the last time I had been at clinic so they weren't worried about me. There is still scope for improvement on it, to bring it down to a number that a non-diabetic would have but they are happy that there is improvement.
I just need to continue to make a continued effort to check my blood sugar levels before meals (which I have a tendency to not do because I don't really like doing it). To aid this a few months ago I got a blood glucose monitor which I had been coveting for quite some time (which is highly sad) a contour usb.
It's relatively small and can be plugged into the computer to download the data off it and then I can make pretty graphs showing trends in my blood sugars more easily. Making it easier to see if things are staying steady or if there is problem areas in the day.
Last night I also discovered I could order free from the company some things to jazz the meter up abit to make it more personal from the standard stuff that comes in the box and a wall charger to charge it up (instead of it charging up through the computer). Most of these things I have now ordered, except a silicone skin for it. That I have to save the strip box lids for to prove that I'm using the machine before they give those out. Unfortunately for me, 2 of those boxes went in the bin last week, so it will be a month or 2 before I can get that. When I do have enough though I will be able to make my meter purple in colour (kind of ) instead of black.
I have realised whilst writing this blog when you are immersed in a world that involves medical equipment they become items in your life like you a mobile phone. You want the best there is or what you see as the best for your needs and not just second best because what you want isn't available. I have 1 of the best nebulisers currently available called the eflow which operates with sonic sound waves and is virtually silent. Yet I found one of the best drugs on the market for helping with the lung disease wasn't so compatible with this nebuliser and I went back to the old reliable nebuliser system for that drug which is old, noisy and takes anywhere between half an hour to an hour to do. 1 of my other drugs still goes through the eflow and is done in 5mins.
In terms of blood glucose monitors there are loads of them available, different sizes and all with different capabilities. For those who like to write down their results there are very simple machines which record your results and that is it. For the more geekier among us you can monitors which track trends and tell you when your outside of your ideal ranges at the touch of a button.
In the diabetic and CF world the drug companies are all about fitting into your lifestyle and getting your business anyway they can!
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